On November 6th, 2015 our life was changed forever. On the 4th I took Darbee to our Family Practitioner, for what we found out later was called a white pupil. I started to notice it about 2 months before but just in the bathtub, I thought it was just the lightning in that room. As time went on I could start to see it other places too. Rhett started to notice it so we decided I should take her in.
On the way up to the hospital Darbee's DVD player stopped working so she screamed most of the way. Rhett shut all music off in the car and would not talk to anyone, Tanessa let Darbee watch her DVD player with her making both girls happy, the heater in the car started to make really awful noises, Darbee would not let either her or myself eat lunch, the doctor's office was really crowded and HOT. When we finally got past the 1st two tests and the NASTY eye drops (you would think we were strangling her) we finally got to meet with the doctor and let him exam her. Rhett and Tanessa stayed out in the hallway because we had all had enough. I was not prepared to hear the Doctor say she has RETINOBLASTOMA a very rare type of eye cancer. He then told me some more stuff but I don't remember what he said. I then went and got Rhett and we went and start to schedule the next steps we needed to take.
On the following Monday the 9th we headed back up to Primary Children's for a MRI. Grandma and Grandpa Atkinson bought her a new DVD player and it worked great!!!
Darbee goes in for her next EUA (exam under anesthesia) on January 21st. They will just look at her right eye and make sure there are no tumors starting on it. She will have to have these every 2 months until we get the genetic tests back and then they can be scaled back until she is old enough to let the doctor just dilate her eye and look in his office. That will happen until she is around 7 when she will "outgrow" this cancer. She will get her prosthetic on February 10-11. Where Rhett has had one when he was little he really is not looking forward to the 1st meeting where they take a mold of the eye. Things are still moving forward for this little girl and we are trying to move forward with our new normal in life.
Thank you all for all the support and prayers that have been offered. They have helped so much and we are so grateful for them all. We can never repay you all!!
Jen, our sister in law, has set up a Go Fund Me account. https://www.gofundme.com/3n9ktdyc